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Ordinarily Jane
Jones' limbs feel heavy and numb. Through the day, the Qulin woman
uses a wheelchair to get around. Lifting a pot of soup is an
exhausting chore, if not impossible. During the night, her leg
muscles cramp so bad, she often has to wake her husband so he can
massage her calves.
But three times a week, Jones stands up, steps
away from her chair and walks. No pain. No numbness. No heaviness.
Three times a week, Jones is independent and
free... buoyant by the pool water and balanced by a physical
therapist.
Jones, along with an estimated 400,000
Americans, has multiple sclerosis -- a chronic, often disabling,
disease that randomly attacks the central nervous system. Symptoms
may be mid such as numbness or tingling in the limbs or severe such
as paralysis or loss of vision. An unpredictable disease, the
symptoms vary from person to person, and vary over time in the same
person.
Periods of active MS symptoms are called
attacks or relapses. These can be followed by quiet periods called
remissions. Because the disease often comes and goes, diagnosing MS
is often difficult.
The disease ranges from very mild and
intermittent to steadily progressive. Some people have few attacks
and little, if any, disability accumulating over time. At diagnosis,
most people have relapsing-remitting disease. This means they have
attacks followed by periods of partial or total remission, which may
last months or even years. Others experience a progressive disease
course with steadily worsening symptoms. The disease may worsen
steadily from the onset (primary progressive MS) or may become
progressive after a relapsing-remitting course
(secondary-progressive MS).
Though there is no cure for MS at this time,
there are medications to treat its symptoms and slow the disease's
onset. Sadly, MS usually strikes people in the prime of their lives,
between the ages of 20 and 50. About two-thirds of people with MS
are women.
Ann Eggers, of Poplar Bluff, is one of those
women with MS. Through she wasn't diagnosed until 1997, she started
showing signs of MS back in 1990.
"I had numbness on the left side of my
body," she said. "After CAT scans and MRIs, it was
determined that I had a mini-stroke."
Of course, Eggers didn't have a stroke.
However, because of the unpredictable symptoms associated with MS,
and its seemingly random attacks -- the disease is usually difficult
to diagnose. So when the numbness in Eggers' body subsided after a
few weeks, the incident eventually slipped to the back of her mind.
Then almost two years later, she began experiencing double vision.
This time she was diagnosed with eye-strain. It wasn't until
Eggers' right side when numb that she started meeting with
neurologists (it actually took a couple different doctors before she
was properly diagnosed).
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Today, Eggers works full-time, is a devoted
wife and mother, and somehow manages to find the time and energy to
be an advocate for the MS Society, as well as chair the upcoming
2004 MS Walk in Poplar Bluff. She gets around fairly well, without
the aide of a wheelchair or walker. By all appearances, her MS is
barely noticeable... if at all.
"I know you can't tell I have MS just by
looking at me. I am very fortunate that I am doing so well,"
Eggers said. "The reason I do the MS Walk is because, while I'm
able, I've got to do everything I can to help others."
Another Poplar Bluff woman, Diana
Dye, was first diagnosed with MS about 10 years ago. At that time,
her husband Ray was around to help care for her, love and support
her, and massage her feet and legs when the pain became unbearable.
When Ray died five years ago, Dye
said she's not sure what she would have done without the MS Society.
Everything from financial aide to education and information. And
even though the MS Society hasn't found someone to rub her feet, the
society helped Dye fine a way to relieve the pain by coordinating
with Poplar Bluff yoga instructor and physical therapist, Mindy
Matthews, to provide Dye with yoga classes.
"I've been in pain for over
three years," Dye explained. "I was doing yoga for 30
minutes, and I was out of pain."
It's programs like these; the yoga
and aquatic exercises, plus things like educational resources,
financial support, moral support, and research for a cure that make
the MS Society an invaluable partner for MS patients like Eggers,
Jones, and Dye.
To find out more about the MS Walk on
Saturday Sept. 11 in Hendrickson Park, or to register a team,
sponsor a walker, or for more information about the even, contact
the MS Society's Gateway Area Chapter at 1-800-FIGHT MS
(1-800-344-4867), or register online a www.gatewaymswoalk.org.
The National MS Society, Gateway Area
Chapter is also looking for volunteers for the MS Walk as it
provides a great chance for teams and communities to come together
for a fun-filled event, while making a difference in the lives of
those with multiple sclerosis. Volunteers are on the sidelines
setting up, cleaning up, registering walkers, monitoring the walk
route, managing snack stations, and cheering for the walkers.
Local contact is Eggers at 686-1426.
Some of the information from this
report was provided by the National Multiple Sclerosis Society. For
more information call 1-800-FIGHT MS or 573-334-1777. |